The Presence Study Toolkit: Helping NICUs Translate Evidence into Practice

The Presence Study Toolkit is here—and it's more than a resource. It's a roadmap for transforming family-centered care in the NICU.In this episode of the Empowering NICU Parents Podcast, Nicole Nyberg is joined by Fabiana Bacchini, Executive Director of the Canadian Premature Babies Foundation and internationally recognized family advocate, to share the remarkable story behind the Presence Study Toolkit.Together, they discuss how the COVID-19 pandemic inspired the groundbreaking Presence Study, why its findings remain just as relevant today, and how a collaborative team of clinicians, researchers, and parent advocates transformed those recommendations into a practical implementation guide for NICUs around the world.As two of the lead authors of the toolkit, Nicole and Fabiana take listeners behind the scenes of its development, sharing the passion, purpose, and collaboration that brought it to life. They also explore simple, practical ways NICUs can begin implementing meaningful change—one chapter, one recommendation, and one small step at a time.Whether you're a NICU parent, nurse, physician, therapist, educator, quality improvement leader, or hospital administrator, this conversation will inspire you to rethink what family-centered care truly means and how small changes can have a lasting impact on babies and families.In this episode, you'll learn:• The story behind the Presence Study and why it still matters today.• How the Presence Study Toolkit bridges the gap between research and practice.• Why parents are essential caregivers—not visitors.• Practical ways to begin creating meaningful, sustainable culture change in your NICU.• The importance of remembering the why behind family-centered care. Download the free Presence Study Toolkit on the Family-Centered Care Task Force website using the link in the show notes, and join us in helping create a future where every NICU family is informed, involved, and supported.Dr. Brown’s Medical: https://www.drbrownsmedical.com  The Infant-Driven Feeding™ (IDF) Program: https://www.infantdrivenfeeding.com/ Our NICU Roadmap: A Comprehensive NICU Journal: https://empoweringnicuparents.com/nicujournal/  NICU Mama Hats: https://empoweringnicuparents.com/hats/  NICU Milestone Cards: https://empoweringnicuparents.com/nicuproducts/  Newborn Holiday Cards: https://empoweringnicuparents.com/shop/  Empowering NICU Parents Show Notes: https://empoweringnicuparents.com/shownotes/  Episode 81 Show Notes: https://empoweringnicuparents.com/episode81  Empowering NICU Parents Instagram: https://www.instagram.com/empoweringnicuparents/  Empowering NICU Parents FB Group: https://www.facebook.com/groups/empoweringnicuparents  Pinterest Page: https://pin.it/36MJjmHThank you for listening to the Empowering NICU Parents Podcast. Be sure to subscribe and leave us a review—it helps other families find us. We’re grateful to be part of this incredible community. Visit www.empoweringnicuparents.com for resources and support.