Episode image

Advocating for a rare cause 

Rare Lives

Episode   ·  10 Plays

Episode  ·  10 Plays  ·  22:14  ·  Mar 24, 2021

About

This episode features a parent who has lost three infant children to a rare illness linked to inborn errors of metabolism caused by enzyme deficiency.  Vikas Bhatia’s ordeal turned him from an ordinary parent to an advocate of securing proper diagnosis and treatment. He and his wife- Poonam Bhatia – established the Metabolic Disorders and Rare Diseases Organization of India. They describe themselves as a parental support and advocacy organisation.  What was his journey? Listen on.  This season has been made possible from a grant by the Thakur Family Foundation.See sunoindia.in/privacy-policy for privacy information.

22m 14s  ·  Mar 24, 2021

© 2021 Suno India